Skip to main content

Grammy Loves Sloane

"And I tell you, ask and you will receive; seek and you will find; knock and the door will be opened to you.  For everyone who asks, receives; and the one who seeks, finds; and to the one who knocks, the door will be opened."  Luke 11 9-10

For those who do not know me, let me introduce myself.  I am Sloane's Grammy.  Being a Grammy is the best job in the world .... until one of these wee ones is sick.  To say that I have lived a lifetime in these past 11 days is an understatement.  It has been full of tears and laughter and sadness and joy.  I hang on to my faith.  I pray more and try to worry less.  I watch my daughter, Courtney, and my son-in-law, Austin, with careful eyes.  I want to be able to catch them if they falter.  I want to lift them up when they need it.  I want to laugh with them every chance we get.

But the real reason I asked to write a blog post was to say THANK YOU.  Thank you to all of you for your love, your prayers, your emotional and financial support, your willingness to do whatever is asked.  Many of you I know.  Many of you I may never meet.  Many of you are friends of friends of friends who decided you would bow your head and say a prayer for Sloane.  It truly has been amazing!

Love... I feel the love all around our entire family and it is because of each of you who are reading this blog right now.  So I ask each of you, please continue to pray hard.  God is good!

Comments

Popular posts from this blog

November 21, 2017

I'm not much of a writer and my mind has been all over the map in the past 24 hours. Yesterday was the hardest day of our lives, to date. One cannot be prepared to sit in a doctors office and be told their child has Cancer. Our child? Our sweet spunky 15 month old has cancer? The pit in my stomach is real? Can you start over? I'm suffocating, we're suffocating. Oh please, God. But there's medicine, and chemotherapy, and really intelligent well practiced physicians. And there was a lot more said and only a little retained. Yesterday was a really really hard and long day.  Sloane was diagnosed with bilateral retinoblastomas, also known as cancerous tumors in both eyes. She will be having an MRI under anesthesia on Friday morning to rule out a tumor in her brain. She will then have surgery to get a port placed in her chest for 6-8 months of systemic chemotherapy. Surgery will follow the chemo and her eyes will be followed closely. We became a part of the Riley Family ye...

One Year

I remember a few things about the morning we went to Riley. 1) I woke up and curled my hair. 2) I did not want to be a frequent member of the Simon family member parking garage. 3) I remember the way the fellow couldn’t look us in the eye before she left the room to get Dr. Plager. I thought curling my hair would wake me up, slap me out of the nightmare that was the past 12 hours with google at my fingertips. I even tried makeup, only to be cried off in the next few hours. The parking garage led to the waiting room, and I didn’t want any part of it. There were so many kids, playing. And I just kept praying that my kid wouldn’t be one of them. For sake of privacy, we will just call her the fellow. She was kind and she was gentle. She didn’t talk much, she kept doing all these funny things to get Sloane to look certain ways, she kept repeating them and she was doing it to both eyes and that’s when we knew. We didn’t need Dr. Plager to tell us what we already knew. But she brought him i...

Remission

“In all this you greatly rejoice, though now for a little while you may have had to suffer grief in all kinds of trials.” 1 Peter 1:6 I never knew how a person fought a battle such as a cancer diagnosis. I would look at them, I would take care of them, I would pray for them, but I never knew how they got from day to day. I never fully understood how life went on, how day to day tasks remained the same and still managed to get done. I never understood that the doctor appointments didn’t get easier, I never fully gripped the never ending emotional roller coaster they were on. I never really understood any of that, until this morning when I realized I am them. I am those people I’m praying for, I am the one still making to do lists and I am the one still holding my breath going in to every doctors appointment. I am the one protecting, understanding, crying, praying, and rejoicing, I don’t know how I got here, I didn’t know I was meant to make it to where I’m standing now. Sloane is in...